Today marks the release of the Consumer Health Quality Council’s story bank video series. We will premiere the three videos at a State House event Thursday morning at 10 AM in room A-2. The videos are below. They and other consumer stories are also available on our webpage www.hcfama.org/quality/stories.
The videos are the latest accomplishment for the Consumer Health Quality Council’s Story Bank project. Several of our Council members are sharing their stories in order to put a compelling human face on systemic health care quality issues. These videos were developed by Consumer Health Quality Council members in cooperation with BU School of Public Health Students Madhavi Bezwada, Meredith Mueller, and Hsiang-Yin Yeh.
In these videos, three courageous individuals share how systemic health care quality problems forever changed their lives and the lives of their parents, children, and families. They make a powerful call for reform. We hope that you share these stories with your colleagues, families, and friends. Share the message that our health care system must make systemic changes so that these stories are not relived by others.
If you are moved to do something…
–Contact James Madden at 617-275-2940 jmadden@hcfama.org to join the movement for better quality care in Massachusetts.
–Contact your legislators to support S. 1277 and H. 2226. Find more information here.
Lisa’s Story: Lisa survived a terrible misdiagnosis and as an empowered health care consumer later saved her daughter from the same misdiagnosis.
Linda’s Story: Linda lost her mother to preventable medical errors.
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Ginny’s Story: Ginny’s life was changed forever by a preventable hospital-acquired infection.
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These three videos are startling in that the explanations by the patients are calm, and so one can contemplate the painful information and outcomes. These could easily be the opening information on a website intended to draw women into a deeper discussion of how we need to address whatever symptoms arise and take them seriously. How many of us have said, “Oh, I’ll wait to see if this gets worse,” and then not taken action to get medical help? There is such a need for a push for PREVENTION in our country, and I hope that these films will show up all over the web. No reason why YouTube cannot spread the word that there are consequences for not paying attention.
Thanks for your efforts, your message, and your continued caring.
Wow,
I just finished reading “Critical Condition”. All of the stories are true. People are dying, getting infections and leave the hospital with diseases they never had before.
When you get handled by interns or “doctors in training” you especially need to be on alert. They are competent, but when they have to watch 30 patients, they will never have enough time to thoroughly take a look at you.
Read “Intern” – a book i recommend to learn about intern’s live during training.
Thanks,
Paul
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In the 10 months since the premier of these wonderful videos, we at IHI have taken them around the world. Their impact has been extraordinary. In our learning and teaching we believe that nothing stimulates the will for change more than the voice of the patient and those who care for the patient. These stories have been shown as part of our staff meetings and in IHI training programs across the US and in Scotland, England, Demark,and many other locations. Audiences have included patients and families, front-line clinical staff, executives, trustees, and regional and national leaders. Their impact is immediate. In the words of one of the leading healthcare execs in the US “I see the numbers all the time but in the story of ‘Ginny’ I see past the numbers to the suffering for everyone involved.” In a recent training program with executive leadership teams, after seeing the video the leaders made us promise they would get their own copies of the DVD (thanks Deb). When people hear the grassroots effots (and the low cost!) of the production, they are in awe.
Today I’m a proud publicist of these videos; HCFA is an active partner in IHI’s work. I’m also overdue in sending the gratitude of IHI and all who use the stories for this gift that keeps on giving. Thanks Ginny, Linda, Lisa, and HCFA. We are also thrilled to hear that there are more in the que.
Jim Conway, SVP, IHI
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I don’t even know,fellow!) continued to write in the same vein, it is interesting people!
nice video but picture not very good for me, are you can increase your quality